I think it is safe to say we have hit the wall. Too much information to digest, too many emotions coursing through us, and too many things we need to decide.
I think we have kept up for the most part, until Friday. Friday was the shock day. That deer in the headlights day. So, Jeff and I took Friday afternoon and evening off from everything. No messaging, no research, no talking (for the most part).
But today is a new day, and time off isn't really an option.
Friday's findings:
1) Left breast ultrasound showed no immediate signs of cancer, but they want to do testing again in 6 months, to see if there is any change.
2) Chemotherapy is to be first. Oncotype results can't be known until surgery. Genetic testing sent out.
Questions:
1) Do we start with smaller doses every week, or the whole dose?
The first round would be getting an hours worth of chemo every 3 weeks for 4 treatments total.
If we opt to start slowly, then the first dose would be split into weekly visits.
2) Are there signs that the cancer is systemic? Is that the reason we are doing chemotherapy? Or is it
that we just need to know if chemo will be effective on this cancer?
3) Who refers the neurologist? Why isn't there one on board?
4) Do we get to opt for a port?
5) Do we really have to rush this decision?
Things to do:
1) Read the literature we have been given.
2) Get meals set up (done).
3) Get a neurologist referral.
4) Decide what work schedule Jeff will be on.
5) Get household maintenance organized, to ease the chaos.
My break is over...its been too short.
Thinking of you all. Tell me if there is anything I can help with. Errands. Chores. Whatever.
ReplyDeleteThank you. Still so much in the air. When I feel like I need things, you will definitely get a call!
DeleteI was JUST reading this year's Top Docs & Nurses article in Portland Monthly. I noticed that Calvin's dermatologist made the list, which I totally agree with. The selection comes from a 5-month process in which they ask medical providers who they would trust with the care of their loved ones, so I trust it to be a pretty good source. Let me know if you want the list of neurologists.
ReplyDeleteBeth (not Ellie)
I am calling my Primary tomorrow...but wouldn't mind knowing which neurologists are on there. I'll look online tonight. If I don't find it, I'll message you. Thank you!!
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ReplyDeleteI'd like to just leave this here for your co-survivor friends and family to read.
ReplyDeleteI found it very helpful!
10 Things to Never say to someone with cancer: http://www.prevention.com/sex/cancer-support