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This blog is not for the faint at heart. If you wish to delve into what I'm facing, you are welcome to read. Primarily, it is for me. And this blog will ideally allow me to keep informed my family and framily about my current state of health. There will likely be unpleasantness and quite possibly some photos...and likely I wont know what I write until it is typed.

Monday, June 13, 2016

Latest test results

So, today was the follow up with the surgeon. We were able to go over the two test results we were waiting for. The Her2, which is the protein produced by some aggressive cancers is negative!! This is great news. This means that I don't need that particular target treatment. It also means we have a few months to collect all the data before making a decision. 


Second test was the MRI. We had a few mixed messages with these results. Instead of a single tumor, I have a smaller tumor that measures 2 x 1.9 x 2.1 cm. It has two satellite lesions measuring 1.2 x 1 x 1 cm, and a smaller 7mm nodule. 

By size alone, this puts me at Stage 2.

The surgeon recommends a full right mastectomy. I may still have to do chemotherapy, but that is up to the oncologist and will likely be determined by the results of the genetic testing. A double mastectomy will be recommended if I have the "cancer gene". Radiation is still needed as part of the treatment. 

Because the Her2 is negative, there is a bit more wiggle room in the timeline for treatment  We have a month or two before all decisions have to be made. The best part about this news is that we have a bit more time to think and reflect about the next steps, the order in which to do the procedures chosen, and time to integrate a Dr. who is also familiar with RSD.

So the next step is to wait for the appointment with the oncologist.


From a personal feeling level, I'm still processing. There are still things to be answered, and I know for sure the genetic test results can take up to a month. So I may still be without a clear plan of action for more time than I like to be in limbo. More thoughts later...

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